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Wednesday, 30 March 2011

  • Where you can find me..

    Er..yeah, it's me.

    I realise I've not been about on here for a good while. So if you're subscribed, after so long, you're probably looking at your inbox and thinking "who the hell is this?"..Anyway, just to let you know (if you remember me or are just curious) I've set up my own domain at www.ruftyroo.com ...that's where you can now find my blog (how thrilled are you now?).

    I just fancied a change/wanted to run away/bury my head in the sand.

    There's a chance I'll return to Xanga at some point...maybe when I feel a little more community-spirited!

    Thanks guys, you're all great. I'll be around.

    Take care,

    mel xXx

Friday, 22 October 2010

  • Truth.

    It's been a while. I know. I'm posting this as a work in progress..until I can process my thoughts and feelings. The first few paragraphs are in quotation marks because I have cannibalised it from a letter that I dashed off to my therapist yesterday. On sending the damn thing I realised that my email had been cropped and was rudely cut off in it's prime. I did not have the energy to summon up the words again nor the memory to recall what I had put first time (having commited the raw pain to "paper" it would seem I had shoved the feelings and lucid thoughts to the part of my brain marked "irretrievable"). 24 hours later and I have added a bit to the end which is "for your eyes only"..I am umming and ahhing as to whether to add it as an adjunct to the email I sent to my T. We'll see. Anyway, here it is..(I'll do a proper update when my will to live is restored..)
     
    "I'm sorry, but I had to write about this and couldn't bear to keep it in any longer. I think that to bring this to our session tomorrow afresh and from scratch would overwhelm me and possible render me mute!
     
    Below is the latest entry my Mum made on the public forum that she frequents. She knows that I know she writes here, but believes (I think) that I do not visit or read the forum. I wish I had not. But in a funny (dark) way I'm also glad that I have (or is that just the ED being glad for more ammunition to rip into me with?). As background: Mum frequently updates her experiences of me and the ED and requests help via spiritual means. Other forum members comment and give support (I'm torn between being glad that she gets this support and mortified by some of the ideas and thoughts that get reinforced by some of the comments recieved!). Anyhow, here it is:
     
    "Thank you dear Scribewolf for your kind words

    It is sad that, as a persons weight goes down so does their mental function.  By the time they are in the midst of the anorexia there is no reasoning with them.  It is as if they have a demon on their shoulder whispering in their ear that they are worthless, useless and not worth bothering with; and no amount of cajoling from friends and family can make any difference.  Apparently the brain chemistry is changed with lack of food and it takes a great deal of patience and love to help them get back to what they were.   

    Mel is concerned about the effect that it has on our family - especially me.  But that is because I go the extra mile - and do her washing ;) If it had been up to her father he would have given up long ago. 

    But, I don't know, I feel that, although she has trodden this hard path, she has the power (although she doesn't reallise it) to change tack at any time. I just pray that she doesn't leave it too late and damage her body any more than she has done already.  She now feels ready to do all that she can to tackle this demon and take her life back. So it is up to us to support her and encourage her every step of the way.

    And yes, she is a lovely daughter in every way!"

    I had oh-so-nearly managed to convince myself that my Dad's seeming disinterest and awkwardness; his silence on visits to me and preference of doing the sudoku over engaging (or even trying to engage) in any meaningful conversation was due to the fact that it is difficult (for I know it must be) to know what to say or how to act/react around me. I'm a difficult person to be around. I have made it so. I had nearly come to terms with the fact that although our relationship was never going to be of a breezey carefree nature, at least we were bound by the love of a father and his daughter. I was beginning to take it as read that he just wasn't ever going to be able to express his unconditional love for me - not because it wasn't there - but because that's just the way he is; the way he was brought up; possibly the way he was born. My accepting that this was the backdrop I had for my journey towards some kind of recovery -I thought- was vital to my progression and a crucial concept for me to get my head around, i.e. Dad's love is unconditional and constant and any action/reaction of his that may suggest otherwise is merely an example of transient anger and frustration. Because he desperately wants to help but does not know how to. He wants me well because he loves me.

    I had started to let go of the idea that my father's goal was to "fix" me because he couldn't cope with the thought that he had not been able to perform his "job" as a father until he had. I was starting to think that maybe he really did love "me" and just loathed the eating disorder (understandably). That maybe he could see past the ED and saw enough in me to love regardless. Maybe, I thought, he loves me. I can accept that the ED makes me intolerable at times. I was starting to think that he really could see past this and recognise that my actions/reactions are at times due to my own frustration and anger at the ED and the battle that constantly rages in my head....

    But then I see this:

    "If it had been up to her father he would have given up long ago".

    "If it had been up to her father he would have given up long ago."...

    ..and in one fell swoop my burgeoning belief is stopped in it's tracks. Perhaps my initial asessment was correct: My father cannot fix me: I refuse to fix myself - therefore I am not worth anything. I am merely a blight in his life and as much as I try I will never live up to his expectations because it is too late: I have brought shame on the family. I am weak-willed and lily-livered; Selfish and thoughtless..I am everything he hates and more. Were it not for my Mum who (more than ever) seems to relish the "challenge" of loving me despite my short-fallings (as if it is a "hard job but someone has to do it - and it falls to me because I'm her mother"), would my Dad even be around? I imagine he would rather be in Turkey leaving the shame and humiliation of having a daughter with a "mental" illness far behind. In fact I can vividly imagine this..right down to the detailed arguments that Mum and Dad may have had regarding this impossible situation and their impossibly demanding and selfish daughter:

     Mum, (almost martyr-like) refusing to give up on me; Dad, frustrated at how she cannot see that she is being manipulated by her own daughter: "For God's sake Sandra, can't you see what's going on? She uses us and then discards us. She can't love us because she only thinks of herself...I will not be made a fool of....She's had more than enough chances and still she chooses to carry on with this nonsense...She's bleeding everyone dry"

    All the signs, that I had started to dismiss as Dad's inability to communicate his feelings; the seeming disinterest in, well.."me", I had started to get my head around the possibility that these "signs" were little more than my Dad's way of coping with the ongoing situation.

    You had told me this was the case. Mum had told me this was the case. I was being "silly". Any different reason for his coldness towards me and emotional distance from me, well, they were just figments of an eating disordered imagination..weren't they? Perhaps not.

    Beliefs that challenge the eating disordered way of thinking are hard fought for and difficult to maintain at the best of times. This little revelation has left me reeling. It has made me question all that I thought I had "come to terms with". Because although the anorexia is based in distorted beliefs and unrealities (or so I've been lead to believe), the truth is sometimes just that: the truth. Sometimes it needs no further analysis. Sometimes how it appears to be is how it actually is.

     

    So this discovery has been a bit of a body blow for me.

     "You want the truth?? You can't handle the truth!" ..

    ..a quote that springs readily to mind. I am left with the thought that really, truly, what more could I have expected? Folk do not have an unlimited amount of patience. I merely manifested what I asked for all along - to be left alone.

Thursday, 09 September 2010

Tuesday, 07 September 2010

  • Round 2. Recovery Innovations?

    Sorry for the delay...this is Part Two of the JT Experience (Part One being at 1st September if you want to get the gist and avoid the "what the hell is she rabbiting on about now??"...Although I do not guarantee you won't think that anyway... )

     

    Oops, so, got a little side-tracked there by life n'stuff. But I now bring to you (yes, I know - your luck is never-ending) Round 2 of "Meet the Expert" (then cry in despair).

    ...So, having composed myself to a point at which I could at least basically function (i.e.nod/shake head). And having left the wry-laughter-verging-on-frustrated-weeping in the bathroom, I gingerly exited and K and I braced ourselves for what was to come..and this is what occured...

    Having been granted access once more to the inner-sanctum of JT -courtesy of Graham/Gavin- I was led by a garbling Janet (it all sounded garbled to me anyway - but then I could barely make sense of my own thoughts so this whirlwind of activity beside me (Janet) was beyond my comprehension at that time!) into a side room which obviously quadrupled up as meeting room/computer room/research room/assessment room.

    Here, I was introduced to Isabelle. She apparently was going to take me through a CD-Rom programme that a section of the research team had been putting together. OK, I thought..I'm interested in seeing the latest innovations in the world of ED recovery, let's have a look...

    At this point K was bustled out of the room by JT with an "oh my dear you must be famished after driving all that way - you must eat! Let's find something for you"..she turned to me "and how about you?"

    Me: "um-uh..well, I've brought a nutrition shake with me..so I'll have that at some point.."

    JT: "Are you going to have it now then??" 

    What I wanted to say: " Look Janet, I'm stressed enough here. I'm in a strange place, with people I don't know, a million and ten miles outta my comfort zone..I'll have the damn shake when I'm good and ready!!!!"

    Now I get it. I really do. The point that she felt she should push the issue..seeing as where we were and why were there..but. Fuck me. Do I get to calm down a bit first? Please?

     Alas, she knows me not well enough to realise that if you push me, I'll invariably back off - preferring to topple off the cliff backwards as I edge away than giving any ground when I feel like a rabbit caught in the headlights of well-meaning folk. Methinks I need a hat, with a siren on top which flashes manically when I feel people have breached a.) my personal space or b.) my anxiety limit!                     

    "Back away with your hands in the air and nobody gets hurt!!

    Sadly, I have no such hat (but will be trawling ebay later..). I also didn't respond in quite the abrupt manner my head had in mind..Although my response was a repetition of what I'd already said - through gritted teeth. Maybe she got the point because she scurried out of the room dragging K along with her (despite the fact I knew K wanted to have a nosy at this so-called "new-technology"..meh, she didn't miss that much to be honest!)

    After a while of cajoling the computer to load the programme it began. Right then, how to describe this without sounding like my usual cynical self. It's a toughie!

    The PC programme comprised of a virtual reality kitchen. In the "kitchen" there is a virtually real (but obviously not real at all) fridge, filled with food (not real food of course) that you can click your cursor on, "virtually" remove from the fridge and even...yes really..."virtually EAT" (um..but not really eat - of course). You even get the pleasure of the real-live (but not) chomping of somebody eating whatever you've picked (I had a go at the chocolate cake, the fish and some chicken) Can't say if filled me up, made me want to vomit or really made me think anything other than.."Woah, and this is what the funding goes on re. the latest ED research...we're in trouble!

    I'm afraid to report that quite soon my scepticism was alive and kicking again, as I wondered just how this could possibly be implemented in the real world of eating disorder treatment. One teeny-tiny fault I could identify straight off the bat - it's not real!! And for me, at least, would be about as helpful as knocking my head off each of the room's four walls before performing a lobotomy on myself with a rusty scalpel (as options diminish I may find this one becoming more appealing!)

    Happily the lovely Isabelle recordered our session with a dictaphone. I imagine the majority of my input would be.."um, ok, so what's the theory behind this? How is this supposed to work? I'm just not really getting the point..maybe I'm missing something...but yes, of course I can take the cake out, put it on a plate and eat it - BECAUSE IT'S NOT REAL!!

    Plus folks, take into account that I'm not entirely technologically adept and laptop micey-scrolly things are damned hard to control when you're a novice!! Nope, 'twas not for me. I hope they found my feedback helpful..uh-yeah . Hey, I'm a hands-up-honesty's-the-best-policy-girl...so that's what you get!

    Praise the Lord, eventually a spark of sanity - K walked in through the door (with JT who alas for me snuffed out the promise of sanity before I got too comfy with the concept.)

    It was time to retire to her office for a "chat"...Oh joy. Well, not entirely. Oh frustration....Oh fuck.

    Credit where it's due though, she had at least read my (mountains) of notes (believe me - it's a sizeable wedge). Still, my medical notes are just that - notes. Maybe I should've directed her to my Xanga for a clearer picture..

    Handily she later posted me out a summarisation of all that was discussed during this session as (as I know you all know) my memory is worse than that of a demented goldfish. I shall furnish you with some of her observational gems:

    1. (and my personal favourite)..".some people might say that you are somewhat stubborn and inflexible".

    Yup, I guess they might...particularly if they've read the rather one-sided notes written of me whilst I have been an inpatient. "Stubborn and "inflexible" would probably fit the majority of in-mates with eating disorders facing yet another inpatient treatment much the same as the last which is "supposedly" collaborative, but is "actually" about as collaborative as being hit by a bus.

    But then, the fact I have this mental illness of course negates any rational thoughts and ideas I may come up with that might help me to help myself. So although under the benevolent guise of being collaborative it actually becomes more of a battle to get my needs met within the restrictive setting of a unit. And might I add, a unit which has had funding diverted away from it (which would've been handy to utilise for more qualified staff, support and a daypatient programme to bridge the massive gap that folk with eating disorders tend to fall down as they're swiftly shipped out of an inpatient unit -where all control is taken away-back to the "real world" where they land with a bump realising they have no experience of coping in it!!.I predict a relapse!..Talk about reinforcing the black/white/all/nothing thinking that the profs profess is an important aspect of eating disorder thinking that needs to be addressed and eradicated...and all the while they're exacerbating it!!) to spend on researching whether a PC-Rom of a virtual kitchen might or might not be of any help. Hmm...I await with interest the findings of this research...I'd be interested in any of your thoughts on the merits (or not?) of such a program..What do you reckon? What would help you? Can you think of any tweeks that might actually make it quite a useful tool?...I know some folk who only have to look at a chocolate cake and they feel as though they've out on 10lbs..so..I reserve judgement (just about) until I get feedback from you guys...See? I can do flexible .

    She also highlighted my problems with anxiety and social phobia (although no ideas on how to address these, so probably going to go with our original plan of taking the edge off the anxiety and OCD-type behaviours with an anti-psychotic drug, at the least to give me a calmer state from which to work on the eating disorder itself).

    She mentioned a rehab resedential..then dismissed it saying I'd need to get to a BMI of 15 to qualify for a bed...Actually this did stick in my mind...If I could just knuckle down and get to 15 then I might get a chance to address what I think are the important issues...As ever I want to run before I can walk!

    The upshot of all of this is, that despite discussing with K that I might be able to turn this around myself, two weeks down the line and I'm still struggling badly. So yes, another inpatient admission looms and I have much to think about my approach this time. Is it another "stabilization to stop me dying"? or could it be more of a Project Rehab (or at least Project More Options Available)..which would see me attempting to increase my weight to 15 (and stabilising it for a good period of time) with either a step-down programme to discharge (which they don't really offer at my local EDU) or then a transferral to a specialist rehab where the aim is about "learning to live". Honestly, after 18 years I think I really have forgotten how to live.

    Naturally I know what the majority of voices will call for...Rationally (no really, I can be rational at times!) I know this could be my last chance. But then that's easy to say when I'm not imploding-head-anxious and being prompted to "just take another mouthful Mel - you can do it"..DON'T PATRONISE ME DAMNIT!!!!

    *Sigh*. Like I said, lots to think about.

    Oh yeah, just one more "innovative, spangly new idea" in JT's research pipeline..Erm..it's a podcast..or vodcast or some kinda-cast to be used on an ipod and used as a "virtual" support. In the background yu hear some floaty, hippy meditation-type music, whilst over the top of that is a monotone voice droning on (I think it's meant to be calming..but still it managed to wind me up!) about how"food is your medicine.." and "every body system is affected by the food you eat"...and on and on...Is it called perhaps something like "positive reinforcements?? And whilst you're listening to Miss no-personality you can also stare wonderously at the moving pictures on the screen..lovely. I imagine they are supposed to generate a sense of wellbeing and calm...Me? I felt about 12 years old.

    Is it just me, or is all this eating disorder research targeting child and adolescent eating disorders?...I know, I know..I'm a tricky customer..but it all feels so..so false.

    Woah, I think I've reached my ramble quota!

    Hope all is well with my friends out there (I'm fairly sure I've a couple :)

    Oh Good Grief!! It be gone 3am here now!..I'm coming bed!!!

    Night all x

     

     

Wednesday, 01 September 2010

  • SHORT update?..(bmi trigger warning)

    I'm going to try to make this a short update. My computer is being exceptionally stroppy at the moment and has developed a tendency to play up at precisely the moments I wish it wouldn't (so now would be a perfect time for it to pull a strop...I can hear it's evil chuckle!). Ruddy technology.

    Again, it's been a while since I last blogged. Much has happened in the last few weeks, but still everything, essentially, remains the same.

    I have, through some fluke of flukiness managed to sidestep the very real threat of being sectioned (thus far at least), despite pushing my luck to inordinate levels with a BMI of 12.17...i.e. stupidly low...and yes, I do feel like death - and look like it too....and yet it was 'me' who brought me to this place..*sigh*. Yada-yada, I know the theories, the psychology, the physiology. One (who does not know me) might think that knowledge would serve as power in this situation. But no. As ever, I can talk the talk (or at least gibber the gibberish because whole, sensical sentences are few and far between right now) but cannot bring myself to 'walk the walk'. I would accuse myself of being spineless, were it not for the fact that quite blatently I have a spine, the detail of which protrudes for all to see. Beautiful and anorexia do not go together....Strange (to those who know feck-all about EDs), but running towards anorexia is NOT an attempt to look like the role-model of the moment..to me, it seeems more an attempt at running AWAY from it. Just a thought...but then I've always been contrary.

    Last week I had the pleasure of travelling to London to meet Janet Treasure (JT) for a "second opinion" re. my anorexia and bulimia. Well, when I say "pleasure", I mean it only in the way that banging your head up a wall, cracking your head open and watching you brain fall out on the floor is "pleasure". So, yeah. I think I used the wrong word there.

    High hopes abounded for this little excursion to see the world-renowned eating disorder expert and researcher. At least they did from every corner other than mine. But still, I was open (as open as I get) to the possibility that she may have ideas and thoughts that would help me to help myself out of this pit.

     My parents, I know, had pinned much hope on this consultation (the pressure was palpable..at least that was my perception). In my mind I felt I had to make whatever she had to say work for me. This was a unique chance, for which I tried to rid myself of my usual cynicism and sceptical nature. I did try very hard.

    I realise that I have fallen, hard, into the self-perpetuating pit of negativity. Negativity breeds negativity. But prior to this excursion I was desperately trying to pull some positivity out of the bag to tag onto myself for this meeting. Unfortunately at the same time I was getting weaker physically, more confused mentally and ultimately iller as the day of the consultation loomed. Terrified I would not be able to express myself properly and make her understand my own thoughts, I only managed to push myself deeper into my ED world - using it as a buffer to the myriad thoughts feelings and heightening anxiety that accompanied what to me felt like a great opportunity. Ok, so I did actually have pretty high hopes myself too.

    Maybe I was looking too hard for a 'knight in shining armour' to present me with a do-able option to get me out of this pit.

    What I got was Janet. Bless her. Kind of hippyish, very well-meaning, earnest in a mumsy way. Essentially a lovely lady. But she made me feel like a ten year old. I imagine she's great with the youngsters.

    My overriding memory is of her repeating "I've heard it all before". Well yes Janet, yes you probably have. But not from me and this is my consultation. I am not everyone else. I am not the same as the last person. I am me - please do not make assumptions without knowing all of the facts (and that does not mean a swift glance through my notes and medical file). Why is it so difficult to be heard?

    I feel I'm to-ing and fro-ing a bit here. Sorry about that. Perhaps though (with hindsight) I was not in the greatest shape to be receptive to Prof. Treasure. During the 5 hour trip to London we did get a tad lost which did lead to me slightly losing it. In fact after 3 hours we actually were in London -Thank the Lord... Alas then we spent the next 2 hours driving around London wondering where the hell the hospital was!! Anxiety soaring? Hmm..just a bit!..As an aside (Mayor Boris Johnson please note) The signage in London is CRAP! A million recognisable landmarks and attractions and barely any of them ruddy sign-posted!

    Ok, back to JT. It must be said that first impressions are important. God only knows what she thought of me ("flustered" being a kind descriptive), but the moment she bumbled out of her office to greet K (care-co-ordinator who had done the driving that day - poor love!) and I and stampeded into my personal space I could feel myself withdrawing - physically and mentally. The lovely JT then -within seconds of introduction- managed to forget my name and admitted that she had not been expecting us until 2pm (our appointment was at 1pm) and had in fact double-booked us! Fortunately for us (I think??), the lady we had been double-booked with did not turn up...oh man, sorry but I've just got to: ..*eye roll*.

    From there she asked "Gavin", her assistant to see to it that we got a drink after our journey. "Gavin"s reply to this was: "my name's Graham"...K and I exchanged 'the look'..I think you can imagine which 'look' it was!..

    So, first impressions? Barely managed chaos!!  We retreated to the loos and actually managed a giggle at the mayhem...Oh dear, I know I sound ever so judgemental. Maybe I am, but we'd come here with high hopes and it felt like we were entering some kind of alternative reality!! Where was the professional I had come to see??..But, like I said: kids would love her, although I was after something a little more..um...demonstrably competent.

    Anyhow, standing, hands covering face, door locked in the toilet stall, I tried to bring myself back and focus on our reason for being here. Afterall, there would surely be something to be gleaned from a mind that had instigated and completed a wealth of research on eating disorders over the last twenty years or so? Deep breaths.

    Round two...

    Which I'll bring to you later today...The risk in writing about it all in one big block is 1. The boredom factor (your boredom!) and 2. The stroppy computer might just say "no" if I blather on for much longer!

    So, more later...if you can bear it! 

    Damn, it's good to be back..didn't realise how much I missed rambling .

     

     

     

RuftyRoo

  • Visit RuftyRoo's Xanga Site
    • Name: RuftyRoo
    • Gender: Female
    • Member Since: 11/1/2008

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About Me

  • Rat-loving, eating disordered, psychologically "interesting" 30yr old creature with habitual hibernating and sporadic blogging features. Just to get it out of the way, I have a 16 year old eating disorder. I've been stuck in the 'anorexia (binge-purge subtype)' - how nice - box by the professionals. Although I believe my ED (eating disorder) to be more akin to bulimia. In my mind (and that really, probably, is JUST in my mind!) my battles with the professionals over my diagnosis and subsequent treatment are legendary. My argument is this: How can somebody having had a diagnosis of bulimia for over ten years (based on having bulimic behaviours but being a 'NORMAL' WEIGHT), suddenly, overnight be shifted -due to the dropping of a couple of lbs- into the 'anorexia' box and then be expected to respond to the treatment that is offered to (at times enforced on) folk with a restricting-type anorexia?

Pulse

Chatboard (9)

  • krysztalowa
    Well you've gone from Partridge to Osbourne, me thinks... So wise up and give your shrink to Rufus instead. Ozzy has it figured out - I'm sure you can catch on :P
  • BohemianLotus
    I want a rat so badly! Everytime I visit your blog, I want to cry. LOL
  • mnbvcxzjo
    I'm glad you're happy today, stay positive have an awesome day today <3 thank you for your support!! just close your eyes and be thankful that you're alive, say positive things to yourself, get inspired <3 :D
  • Laiza
    SQUEACK!!!
    • Posted 11/27/2009 5:20 PM
    • by Laiza
  • rabidspaz86
    RawR
  • RuftyRoo
    Aha! A person on my chat Hey Sophie (NOT) Shitfxce, thanks m'dear..What a lovely thing to say . Of course, feel free to add me..I feel honoured. Will definitely be trogging over to your site for a wee perusal too..
  • SophieShitfxce
    Hey sweetie :) your blogs seem to be pretty damn intresting so your like the first person ive ever subscribed to in like two years. O.O So im leaving you a comment then im gonna add you, if you dont mind :)
  • RuftyRoo
    Ok, so perhaps you do need more than a couple of people paying more than a passing interest to my inane ramblings...possible not a goer..lol
  • RuftyRoo
    Hmmm ok folks, so how does this chat work?...This is a test, this is a test!..